Patient Society Village

The EADV actively works to develop a synergic action between the patient community and the key healthcare providers. We recognise that there must be a fundamental collaborative partnership between the parties and we want to advance this theme by strengthening productive relationships with patient leaders to explore different perspectives and extend dermatological support.

Launched in 2015, the EADV is proposing yet another Patient Society Village during its 28th Congress in Madrid and will occur on two consecutive days – Thursday 10 and Friday, 11 October 2019.

In this dedicated area, fully supported by the EADV, you will have the opportunity to see the work of the participating organisations, discuss patient advocacy resources and services offered to the professional dermatology and venereology community. The main aim of the Village is stimulate interactions and provide a platform were key opinion leaders and health care professionals can discover and learn about the role and need the patient organisations, as well as discuss activities of common interest.

We kindly invite you all to visit the Patient Society Village: this is a superb opportunity to garner a better understanding of your patients’ needs!

We look forward to welcome patient associations interested in exhibiting with a free booth during the biggest dermatological meeting in Europe!

Patient Society Village

Dates: Thursday, 10 October & Friday, 11 October 2019

Location: Hall 9 of the IFEMA Congress Centre

Our Patient Society Village will host the following 19 Patient Organisations from Europe and further abroad:

AADA – Spanish Association of people affected by Atopic Dermatitits (Spain)
AAUC – Chronic Urticaria Patients Association (Spain)
AEDM – Spanish Association of Mastocytosis and Related Diseases (Spain)
APPF – Association Pemphigus Pemphigoïde France (France)
ASAEXP – Enfants de la lune  – Association d’aide aux enfants atteints de xeroderma pigmentosum (Tunisie)
ASENDHI – Spanish Association of Patients with Hidrosadenitis Suppurativa (Spain)
ASONEVUS – Spanish Association for Giant Congenital Nevi (Spain)
Dutch Skin Patients Federation (Netherlands)
Dutch Vitiligo Patients Organisation (Netherlands)
EFA – European Federation of Allergy and Airways Diseases Patients’ Associations (Belgium)
EUROPSO – European Umbrella Organisation for Psoriasis Movements (Slovenia)
France Psoriasis (France)
French Vitiligo Association (France)
GAAPP – Global Allergy & Asthma Patient Platform (Austria)
IADPO – International Alliance of Dermatology Patient Organizations (Canada)
IFPA – International Federation of Psoriasis Associations (Sweden)
IHhS – International Hyperhidrosis Society (USA)
Irish Skin Foundation (Ireland)
Psoriasis en Red (Spain)
Skin and Allergic Diseases (Russia)

Read the guidelines below and apply to get you space!

Invitation
Guidelines
Application Form

Patient Centered Session: 

“Building the doctor-patient relationship through effective communication”

Day: Friday, 11 October 2019

Time: 08.30-10.00 & 10.15-11.45

Room: N115-116

Since the EADV Congress plays a key role in the exchange of ideas, this year in Madrid the Patient Association Working Group (PAWG) has organized a joint session together with patient organizations and the Psychodermatology Task Force.

Amongst other things, we will discuss effective interviewing for patient engagement, a skill that we -as dermatologists- should master, the consequences of inadequate patient communication and best practices in communication for an optimal doctor-patient relationship. There will also be a panel discussion that will include different stakeholders in the dermatology environment (patient leaders, a nurse, a psychologist and some dermatologists) to gain a global view and share perspectives.

Full session details can be found on the scientific programme

Please contact Ms. Marina Binarelli (marina.binarelli@eadv.org) for additional information.